Thursday, September 25, 2008

Hi Everybody,

Is anyone there???? I'm so sorry that i have not written in such a long time. Guess what? I had a busy summer. Fortunately I was able to spend a fair amount of time at the shore this summer. It was really good to be at the beach. The girls brought the babies down and we had so much fun. Isabelle (Izzy) is almost a year old. (Oct. 13th) Christian was 4 in June and Miss Emma is 2 1/2. I've continued with chemo every 28 days for 5 days in a row. I was doin ok until about 6 weeks ago when i started having BIG problems with nausea. I actually needed IV fluids with IV Zofran for 7 days 2 weeks ago. Thank goodness for my wonderful nurses Kathy and Heather who arranged for me to get the fluids at home and not in the hospital. We are trying to decide now what to do about the next 2 rounds (8&9). I continue to be nauseated (not losing one ounce by the way !!!!)so maybe we will do a bone marrow biopsy (YIKES)to see where we are. Still dizzy which doesn't help the stomach problems. And still very deaf. It's actually a little funny because Joe has had bad hearing since the days when he was a rock star. So when we are in a public place niether of us can hear. It takes both of us reading lips to decipher the dinner specials at a restaurant. And once when asked what kind of dressing I wanted on a salad, I asked for a vodka tonic.
Beach Betty I looked for you at the beach but never saw you. Hope all is well. Congrats on your new grandbaby. To the collegians, Meredith, Laura, Carolyn, and Mark ( i hope i'm not fogetting anyone) can you believe you are sophomores ? May Day you are so funny. I too need a concealer bra. but you made it sound much funnier. Visitor Allison, I'm sorry i missed you at the shore, i was not there that week but so many of my friends ask if i've met you we really need to get together. As of monday i'm on house arrest because my white count is very low making me very susceptible to infection. I hate to even print this and jinx myself but it's been almost 8 mos. since i've been in the hospital. Heather has been (and Kathy) my biggest supporter in flying under Dr. Porter"s radar several times this summer when i had fevers and other symptons. I've developed a real phobia about being in the hospital so i am eternally grateful to everyone who have gone out of the way to keep me home.

Well i will close for now. I really and truly think of you all the time and wonder whats happening in your lives. THANK YOU to all who supported the Lite the nite walk last week. It was very moving once again. Meg Thanks for your work. Thank you all for the continued cards and blogs and kind thoughts I know some of you were wondering if i was ok because it took so long to write but thanks to your prayers and thoughts I'm ok. I love you all and i will write soon.

Love Debbie