Starting Vidaza Tomorrow @ HUP
Dear Fods,
I am slowly limping back from the last HUP stay but am very weak this time. It is taking longer and longer to recover from my stays at HUP. My girlfriends have taken me out 2 nights for dinner and Jessie and the kids came up for an overnight before they shipped out to Lebanon to visit Walid's family. They arrived about 1 hour ago (Thank God!!). Apparently, the kids were very good on the flight, slept for most of it, and watched movies for the rest of the trip. Jess and Walid, on the other hand, were probably up for the past 48 hours!
I start vidaza tomorrow as an out patient at the HUP clinic for the next 5 days. My wbc is elevated @ 28 and we are not sure what this is about (infection or elevated leukemia??). My ear is still tender but is finally back to a normal size. My eye is back in the socket and looks normal, although I have some some blurry vision. Once again, the steroids have cleared things up for me. As always, when I am on 40 mg of prednizone I am ravenous and am eating everything that comes close to my mouth. I am ordering from Piccini's as we speak!
We were thrilled to be able to go to Bobbie's party yesterday and see the family. The food was great and I ate everything on my plate. Afterwards, we came down to the shore and had a nice day and a half. While the weather is not the best, we did just come back from a walk on the beach -- if you call Joe holding my up while I stumble along a walk! But I did get to see the water.
Joe is off tomorrow and we head up to HUP in the early AM to start the treatment and will let you know how it goes with this new round. I need to stay out of HUP. I will nader down about 10 days after the end of the chemo.
Thank you for the cards, blogs, and calls. You are all so wonderful to hang in there with me and keep me afloat when times get tough.
I love you all.
Debbie
posted by Joe @ 5:11 PM
24 Comments:
Hi Deb,
I am so glad to hear you are up and about, I am sure the beach was great medicine for you.
Good Luck with the Vidaza! I hope and pray the next few weeks go smoothly.
Always in my prayers,
Cindy
Hi Debbie,
Thanks for the update. It's always great to hear from you. It's nice to hear that you are getting around. Hang in there for the Vidaza treatments.
Take care,
Betty
Debbie, glad to hear that Jessie et al made it safely to Lebanon, I hope they have an awesome trip. You are a true fighter in every sense of the word...I hope this round of treatment isn't too rough on you. If you need anything, you just say the word. Brian and I had a VERY busy weekend at the store, lots of graduation parties, lots of catering... I am all cooked out! We went this morning to Harrison's school to see him participate in the school talent show, it was adorable, his class sang a very cute alphabet song set to music from the Adam's Family.... just how stinking cute are these little angels of ours? Grandkids are the very best thing in the world. You stay strong my friend... I'll be praying for you,
Love, Patty
Hey, Deb! I've been luring on your blog (and, of course praying for you!) Working and babysitting doesn't leave much computer time. Liam's almost 14 mo. now and so much fun - but you know all about that! Grandkids are the best! So glad to hear yours had a safe and uneventful trip. Hang in there. Thanks for keeping up with the posts, Joe. Love & Prayers, Mussie
Hi Debbie:
It is great that you were able to get to the shore this weekend and enjoy the beautiful weather on Sunday. Hopefully the Vidaza will work and the next few weeks are hard on you. Just keep thinking of the beach when you are feeling better and that will get you through it. Thoughts and prayers are with you. Love Shelly
Debbie
I love you so much and I am constantly thinking about you and praying for you. You are the strongest woman I know and I look up to you because of everything you have over come. Love you lots. Mere
Hi Debbie,
Hope this blog finds you well and out of HUP. Take care, God Bless, Visitor Alison.
Your probably beiing "vidazaled" as i write.. i sure hope it all goes smoothly for you and without reactions.. thinking about you.. love..mdf
Deb:
Glad the ear and eye are better - lets hope the Vidaza does its thing.
M2
Deb,
Goodluck at HUP. Thinking of you and your family. Glad to hear Jessie and the kids got there a-ok. Stay strong.
<3 MEG xoxo
How's it going?
Thanks for the update! We hope things go well with the Vidaza and, as always, have you in our prayers.
Hi Deb, I know we just post once and a while, but we check several times a day to see if there are any updates. I don't know Vidaza from Viagra, but I bet that Joe does! Anyway, our thoughts and prayers are with you and your family. I don't know why all of this has come your way, but there is not a flinch that you make that the Lord doesn't know about. Somehow you are part of His plan, as are we all. Hang tough.
Love, Bob & Kay
1/2way thru your vidaza this week!!!!!!!!
you rock! we will miss you down the shore this wknd but so grateful you're back in the saddle again.
scott, michelle, johnny, & joey will be there part of the wknd so we are excited.
someday our grandkids will be there at the same time.
remember-the porch is yours (as well as the house) it's ok...
hang tough guys...this will work.
remember, you are WONDER WOMAN and
together with God helping here and there we will do alan's clam bar this summer!!!
grace,peace,love,hugs
tony & jill
Just saw Walid's pics on facebook. They look like they survived the trip nicely and like they're having a wonderful time. Hope you're doing well and the Vidaza's doing it's thing on the leukemia - but not on you! Love & Prayers as always, Mussie
Hi Debbie: Just checking to see if there was a new posting. Hope you are fairing well with the Vidaza and you will be back on your feet and feeling better. The shore is waiting for you. Love Shelly
P.S. Read my previous posting and left out "Not" - I am sure you knew that.
Debbie:
Just wanted to say "Hey!" and we are always thinking of you. Aunt Angie's Birdbath is overflowing with blooming portulaca's....which make me think of you and her.
Have had fun on Facebook seeing photos of Jessies trip to Lebanon. It looks like everyone if doing well.
Hope you are feeling OK from your Vidaza treatment. Love you bunches.....COD Eileen
Debbie, just checking in to say hello and see how you are doing. So glad to see on Facebook that Jessie, Walid and the kids arehaving a great time in Lebanon. Hope you are doing well. Always thinking of you! Love,
Patty
hi deb,
it has been awhile. life has been crazy, I am sure bruny caught you up. hope all is going well with your treatments. you are in my prayers every day. charmaine sends her love also. Mom asks for you almost everyday. heading to cape may for the 4th as long as we can keep david from doing anything silly like fall again. he won't be packing the car this time.
love, hugs, and prayers,
jean
Hey Deb,
Looked out the kitchen window today to find my daisies peeking out over the wall. Thought of you!
Miss you! COD Eileen
Are you still at the shore? I sure hope your feeling well and that the sea air is keeping you healthy...been busy with mark's baseball ( he just got back from a showcase in cobb, ga.) and patrick coming home for a much too short visti.. but he had to get back to his summer job...and i have been working summer school.. but. i wanted to check in. I look everyday to see if there is an update and im hoping no news is good news.. stay strong.. love you.. mdf...ps..didn't we spend alot of time dancing to mj!
Hi,
Hope all is going ok for you. I finally went to the beach on Friday afternoon. No sign of your family there.I can't believe that was my first time this year sitting on the beach. I've been on the boat all summer. There is something to be said about having a bathroom just feet away from where you are enjoying the sun.I hope all is well.
Debbie, it's been ages, sorry I haven't posted but it has been crazy to say the least. The store is very busy, we are growing leaps and bounds. We went to Orlando for a few day and that was a blast. It was so much fun seeing John and Sandra, Michael, Ang & Eileen, John & Ruthann etc.... we had a really nice trip and a lot of laughs. A great getaway.... but reality always has a way of rearing its ugly head so here we are back in the normal day to day rat race. (you know we wouldn't have it any other way...) Sandra is officially retired from the Air Force and safely home in Omaha with John..HOORAY!!! Janet is looking awesome, can't watit for Graham's arrival in October and the boys are simply heaven... LOVE those grandkids!!! Michael is working hard this summer as his 2nd year of college fastly approaches. Brian is fantastic as usual, he is truly my better half. Enough about me, how are you? Are you enjoying your shore home... I know how much you love the beach. Hope you are doing well. Thinking of you as always, Love,
Patty
ok.. so i know debbie must be busy.. but has anyone out there in penn seen or talk to her? don't want to bother them.. but am wondering how they are doing? thanks.. mdf
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