SORRY FOR THE POST 1
Hey Everyone,
So sorry for posting so late. I did not have a good nite or morning. I'm feeling better now.Last evening i began to feel achy all over (like when you get the flu )and my mouth started to burn. I have an ANC (absolute neutriphil count )of 0 for 3 days now so i am bound to feel rundown and achy. But i just tossed and turned all nite and could not get comfortable. I really had to drag myself out of bed today. The docs and nurses said it was ok to chill in bed for a day but with my 2 bouts of pneumonia previously when i had an ANC of zero i thought i should be up and about (as much as i can in this room ). So i made my bed and then the surgery center girls called . Its always so good to talk to them and catch up on their lives. My nurse Nicole came in with a cupful of pills and told me to take them cause i was getting platelets and needed the tylenol and Benedryl so i would not have a reaction. You know how desperate i am getting for company so i just kept talking to the SC girls. Well Nicole came in to hang the platelets and i was still talking. She started the transfusion before I realized I didn't take the pills. She was not happy with me. I told her i have never had a reaction to blood products and hung up the phone. I'm not kidding within 20 min. I had terrible abdominal pain and started throwing up. I also broke out in several hives, but did not tell anyone, lest I be chastised further. They gave me ativan for the pain. They have doubled my dose of magnesium so I get 2 grams IV a day and 2 grams PO a day. The tacrolimus eats up the mag and they need to replace it. So maybe I cannot tolerate that much mag by mouth and that is why I got sick, but who knows.
Joe is here now and retrieved this blog which was lost for about 5 minutes! I am now feeling OK -- not great but better than earlier in the day. So now to you guys: Mo and Bob, hope you had a safe trip home, it looks like a beautiful day -- it must have been hard to leave the beach. Bev - hope your party goes well tomorrow, I wish I was there to see all my old friends... Rick - glad you had a good weekend. Hanging a few pictures does not sound too bad. There is nothing like freshly painted rooms and remodeled bathrooms. Hope you are done now and can enjoy the football season... Beth - lying on a float in your pool sounds wonderful, except I have to do it at night from here on out. No more sun, ever. I have to be fully covered because of the BMT I could get 3rd degree burns from the sun. I have not come to grips with this yet, but we will deal with it once I am out of here... Sue and Rich - are you really alone in an empty house now?
Well, everyone enjoy these last few days of summer. I am ready to say adios to the summer. I am more of a cool weather gal. Hope all is well with you and your families.
Love you lots.
Debbie
posted by Joe @ 3:40 PM
10 Comments:
Hi, Deb. Just got home from work. Got back from S. Bend yesterday afternoon and slept for a couple of hours. It really takes a lot out of you at these reunions! Especially from 8th grade -- so much more difficult to muster up those memories than from high school reunions. But, the Our Lady of Hungary reunion was wonderful. As I expected, I saw classmates that I had not seen since 8th grade (1965). We hugged, talked about the old times and looked at pictures. Everyone told me I was never paying attention and was always talking -- mostly to boys. But I only had brothers, so that boys were who I felt comfortable talking to. Jen got back from New Orleans at 2 a.m. this morning. Flight delayed because of bad weather in Georgia where the plane came from. She was dragging this morning; me too, a bit, since I woke up and waited for her a bit. That mother thing -- can never get over it! Thought maybe Thomas wanter her to come to New Orleans to propose, but not. Maybe he will do that in Asia or Australia in a month! Doesn't matter - he's great! Sorry you are not feeling well today. I know you appreciate what we all forget to do -- that is appreciate the days we feel good because we never know when we'll fell like shit! Take care babe. I'm thinking and praying for you always. Tell all hello. Love, Cheryl (Crone)
brunswick stew. yep, right around the corner. joe's cozy fire, grammy's sweater, the gang and you. hope you get a better night's rest. thinking of you always. xoxo km
Dear Debbie,
sooo sorry to hear you had such a bad day.. now you of all people should know you need to follow the nurses' instructions!!! Poor darlin' I'm glad you are feeling a little better now. Hope your night continues to improve and look forward to talking (or should I say blogging) with you tomorrow.. will try to get to write my favorite day and/or night! I did hear a good "interview" question the other day.. what do you have in your wallet right now?! mmmh... lets see, about $30 and some change plus a penny from heaven I found.. some photos of my teenagers and some nieces and nephews... my son's middle school ID (don't know why but I keep that one cause he gave it to me!)couple of credit cards, grocery store card and college ID for a community college I teach at... a coupon for free photo development in Ireland (now what good is that to me time to dump it!). A business card of a friend with a James Joyce postage stamp I've been meaning to send her! well I better go do that now!....
Whats in your wallet? (oh I can only imagine Rick's answer to this one!?)...
lots of love, Visitor Alison.
Hi Debs, it was great talking to you this A.M...we lucked out..everyone at MSC was so excited to actually speak to you..we will all miss you at the party.. but I'll try to keep you abreast of all the news ( even though I am a zero when it come to that..duh...)I was thinking of you again on the mount at Lake Placid and how your family left you ..it put me in mind of one of the best days of my whole life( I know that is usually reserved for weddings and births...and the girls birth WAS a doozy as we all know)...but during our sensational trip to Australia, one of our destinations was Alice Springs ,in the desert,smack dab in the center of the continent...well at 4am Joe roused us out of bed,told us to dress in layers ,as it was 30 degrees out and would later get up to about 80 degrees...this we did...and then took a car to the local airport ,where we climbed into a two engine 4seater ,tiny,tiny,tiny airplane and took off in a westerly direction over the Australian desert...I kept looking behind me(east) because I wanted to catch the sun rising ....talk about an awesome site ..if nothing else good happened all day it would have been worth our while( of course Jen &Mich slept through it all..could't beat them awake with a stick) anyway...looking down at the terrain was like looking at pictures of the surface of the moon...flat,lots of craters,small hillets..basically nothing for as far as the eye could see...we flew like this for two boring hours and I did begin to wonder if the girls had got it right..sleep,sleep,sleep. We finally arrived at our destination,a big surprise to us (Joe loves surprises..for us not him)WE got on a bus and drove another half hour,arriving at Ayres Rock! This in case you don't know is a prehistoric monolith in the middle of the flat desert that is one mile high and 7 miles around it's base..very impressive indeed...well, I was even more impressed when Joe announced that we would be climbing to the summit that very day..God help us all....WE started our climb together ,and at first it didn't seem so bad...it actually appeared to be doable( keep in mind that as usual when Joe told us to dress 6 hours earlier,I ,in keeping with my theatrical background?? dressed as a mate to Crocodile Dundee complete with ranger vest ,knee socks, hiking boots ,cargoshorts,and last but not least my ranger hat with the corkscrews dangling down to keep the flies away..I think Prince Charles has the very same hat!!) I think I looked really good....MY girls, who really love me alot,said I looked great(that was right after they blew snot out their nose..am I allowed to say that?)Anyway, during our climb we got to a part where 75people ,in the past 100 years have fallen off the side of the rock face ,and died,,,this information daunted my spirits somewhat,and I had trouble moving onward and upward...all I asked for was a fifteen minute rest stop(MIchelle had already fallen asleep standing up with her head against the rock,so I thought this was appropriate..well I was completely vetoed and off the three of them went)..leaving me FROZEN to my spot..I could NOT move ..really..I looked around and was completely in PANIC...I didn;t know what I was going to do..then out of nowhere I heard a little girl crying,she wanted to go back down,her dad was trying to comfort her and he said ,"come on sweetheart,you can do this, let's go talk to that ranger over there, she'll help us"..I thought great there's a ranger here that can help us all, Thank you God... I turned around to look for the ranger and realized they were looking at ME...the ranger....Please God are you out there??...next came an older couple( I kid you not the were in their 70's)...slowly but surely inching their way toward me ...."let's ask this ranger how much farther it is", I heard them say...I heard myself say,"am I in the twilight zone"...well, you know me, ICU nurse to the core,I will not be undone ...I wiped the tears off my face claiming windburn ,and said follow me we'll do this together....about two hours later the five of us(my new little family)made it to the very top and signed the guestbook..I completely ignored my old little family for afew minutes at least( it was hard to keep up the pretense,as when the saw us getting close they were screaming their brains out for us to make it) When we got to the top it was by far one of the most unbelievable feelings that has ever come over me ..all of us actually...we were in awe of ourselves and very happy,proud,excited,heart pounding,exhilarated,jumping for joy...you get the idea I'm sure...it was by far one of the most sensational days on my planet memories.....anyway,when I read you're experience on LP ,I knew the feeling and remembered this fun day...hope you have a better nite ..once you get more blood you might feel better....I sent you a goodie bag (left it at you front door..hope nothing melts)miss you love you,hugs,prayers XXOO:)Bev
Dear Deb:
Just checkin in quickly to see how your day/night went. Getting ready to have a family dinner with all of us and no guests! Whew!
Sorry to hear that you have had a less than optimal day. But I am amazed that you have really tolerated much of this so far better than I was expecting. Must be that the donor was 36. I get tired just thinking of your days. Good thing I wasn't your donor.
I am trying to type and Bee is swinging a silly cat toy around my head with bells and a feather. Picture that. Oh yes the cat. Frankie...have I talked about him...we got him from WalMart back in June. He sure is cute but I am thinking I need to wean him of the indoors.
Dave is picking up the football player Colin...Mere is coming home from work via Radio Shack since she may have dropped her phone for the last time. So...off the put the finishing touches on dinner.
I will write more later...and Visitor Alison...I would have to say, less than I had earlier today as Brendan and I escaped to St. Louis for a shopping trip. Didn't find much but at least he got this huge dessert at Chilis that even he said was too Chocolaty.
Better run....
Later...and all our Missouri love. COD Eileen
Mom - I hope you're feeling better and getting some much needed rest. I had to tell you about what Christian did today - before I forget!
He and I were sitting at the dinner table (Walid was late at work tonight) and he was dipping his carrots in ranch dressing. He held one up and said, "Want one Mommy?" I said, "No thank you." He dropped one next to my plate and said, "Here ya go." I picked it up off the table and dumped it on my plate and went back to my dinner. He looks at me and says, "Say THANK YOU Mommy!"
I'm laughing just thinking about it. So I didn't practice what I preach - do what I say but not as I do.
Christian sat there very quiet for a minute and I could tell he was thinking of what to say next. He looked at me and said, "How you doing honey?" Now he's taking after his mama!
I miss you and hope we can talk tomorrow. Love to all the FODS, CODS, KODS, etc...
Dear Debbie,
Hope you are doing better as I type this.... I have been thinking and thinking about "the best day" question and it has done me such a power of good... oh and before I go any further. Didn’t you just know that the rascal of a brother-in-law Rick would deliver on jokes about what's in his wallet!
But back to best day... I've had such a sad year, and my personality is always to look on the bright side, try to cheer folks up, look for the answer, and fix it!.. This year, has been so tough I just can't fix it for anyone.. But it helps to know I sometimes say the right things (in between the wrong stuff!).. And sometimes help others. And my own question has helped ME so much this past week!
Anyway.. Back to my original story... (Come on folks listen to me imagine the brogue.. it won't be soo boring..).
Anyway the last week or so I've been thinking what was the best day.. and there were sooo many I couldn't pick one.. and each memory made me smile and each story I thought wow, that's a good one!...
So I decided to honor my American hubby with a romantic best day with him (he's called my American hubby cause I used to have an Irish one... looong story for the comos party)....
I remember in our early dating days (he's my 2nd hubby so not too long ago!! lol), he asked me to take a day off work and join him for a "Christmas Day" just browsing, antiquing and bar hopping in Fell's Point Baltimore.. so I did.. and it was soo magical.. We walked around in the brisk December air, ducking in and out of antique stores, little markets, ...delighted to not be working when all around us were... We peeked into this coffee shop that was "old Baltimore hon!" but had its own unique decor with tinsel that was purple plastered everywhere.. the artificial Christmas trees were purple, every ornament on it was purple, it was surreal.... he had coffee.. I had tea.. and some sticky bun or unhealthy bagel was consumed..... and we chatted, warming our hands on our cups..with a street view table... while watching the purple tinsel/lights/trees glisten..we both exchanged our Christmas cards to each other, and as we read them.. as if on cue.. it started softly snowing outside... really gently, as Christmas music played so very softly in the background.. I read words of love to me as he read words of love to him... it was over.. as a fellow fod said about your chocolate cake.. he had me at hello (sorry Tom Cruise that is NOW DEBBIES saying...)... I knew it was all over.. this was it.. no matter what I wanted to do with my life or not (Ireland is always calling me back).. nope.. that moment, the music, the purple tinsel, the songs, the snow... "I'll be home for Christmas.. if only in my heart"... I knew my heart would always be with him... my Lenny....
a grown woman, mother, feeling no way could I give my heart again...
he had me at hello... or at least at the timed snow fall in the purple coffee shop we have never been able to find since (although every year since we take a day off work before Christmas and antique and bar hop & love our time as we wait "to be home for Christmas"...).
Many more best days..but that was certainly one of them.. oh I've loved sharing the best days with the FODs it's been like reading mini-novels.. it's lovely.. Bev I was cheering for you during your Ayres Rock climb.. I so want to see it all..thanks for living it for me... but I'm not going through that climb ranger Bev...
This last week of remembering my own life at 41 when I was feeling blue.., has made me realize I've had more than my share of great days... and there is still so many more to come.. for sometimes it's from far off travels... but sometimes it's just in your back garden.. as is this blog....just at my finger tips...
Night, Night, Debbie, I will share with you my father's goodnight.. he wanted me to be a "citizen of the world" I had a world map in my room that he peresonaly made the frame for me and pointed out every country that ever appeared on the news... he would say to me...
Good night Al, Nos Starr, Oiche Maith, Bon Nuit..sleep tight Al...
My father was not allowed schooling after the age of 11.. but he could say goodnight to me in 4 languages and find any know country in the world on a map...oh yes I've had many "best" days...
Oiche Maith Debbie.. It’s Gaelic for goodnight... lots of love, visitor Alison
and p.s.
I HAVE to meet the original Mrs. T.... throwing the meat at Rick... the woman is blogging.. I LOVE this lady... sooo much already.. lets see gotta think of a song Mrs. T snr will like...
lets see... "pardon me boy.. it that the chatanokchocho (spelling!)
nap.. not quite there yet...
I would say.. the minute she walked into the room I would be inclined to sing...
"I say hello, Dolly, well hello, Dolly it's so nice to see you back where you belong.." OK Mr's T snr over to you.. lets bring home the bacon! lol
PS to Jessie,
That Mr. C. is too cute for his own self. How ya doin honey? You better watch he doesn't start asking all the little girls in play group that question. And I agree w/ Janet...we need some pictures!!!
Love, Reen
deb, look at what you've done today while engrafting in isolation. you are continuing to bring hearts together! i am rolling at little drink of water mrs. teklits winging a pork chop [in a baggie] at rick! at our next gathering, we all want and deserve and instant replay! you go mrs. teklits! and sweet allison, we all can't wait to meet you. tonight i am meeting with my brogue friend louise fanslau, i have to tell her about you! deb, you are more than special, you are magical and i am so lucky to know you. remind you cells that they are in the magic kingdom. thinking of you all the live long day. take your meds. xoxoxoxoxokm
my best day....gotta give that some thought...great question. oh, and don't have a wallet. i lost so many that i stopped carrying the damn things.
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