June 28 Update
Dear Fods,
There have been some ups and downs since the last post and we thank you for keeping up your diligent watch on Debbie.
Debbie completed the first 28 day course of treatment and we see some positive progress. The outpatient drugs did their job and they knocked her counts "waaaay" down and she bottomed out with a 1K platelet reading! That said, the drugs also knocked out some of the leukemia. While not clean, they are reporting a positive effect on Debbie's bone marrow. We are awaiting more definitive readings in the next days.
The BMB last week was not a good one -- even with MVP Porter at the bat. He could not get a core sample and had to go back in twice to get one. Not a good day.
Debbie was able to go to Holly Seward's daughter's wedding last Friday evening. It was a very nice affair in a wonderful mansion overlooking the Delaware River. She was able to hang out with her nurse buddies and even turned a dance or two -- for which she paid the next day.
We left the wedding and continued East to the shore house and had a very nice weekend at the beach. The temperatures were very nice during the day and cool during the night. One of the best weather weekends at the shore since we have been going down there. Debbie was able to relax on the beach -- sun herself -- and even go to the Outback for dinner on Saturday afternoon.
Jessie and the babies came up for a visit on Monday -- Wednesday and that cheered Debbie up. They were able to go out for ice cream, visit Freddy Hill Farms, and just spend time together. It is always great to see them all and how fast they are growing. One of these days they will sleep through the night.
Today, Debbie started he second cycle of treatment and she did not have such a good day. She turned down the zofran this morning and paid the price for the rest of the day. She took some medication and things have seemed to settle down. Debbie was able to eat some rice for dinner, but has stayed in her bed for the rest of the day. Back down to HUP tomorrow for another dose.
Hopefully, things will be better tomorrow. This is the first day of the 7 day injectible chemo cycle which ends on July 4th. Debbie's counts are very low to start again -- but they are watching her closely.
Thanks to all for continuing to keep in touch. It means alot to us.
Debbie sends her love to all.
8 Comments:
Hi Debbbie,
I am so sorry to hear that you do not feel so well today. I saw Joe
down the shore last weekend and he said that you had a nice day at the beach and you a nice dinner.
Please take one day at a time and I will continue to keep you in our prayers and I am praying for some
sunny days ahesd you sure deserve it!!!
Lovr ya,
Donna,Chuck ad Donna
Dear Debbie,
Wow, what an ordeal.. but soon it will be beach time for you, glad you had time with the grand kids and Jess.
Our Irish Festival was a huge success. Have to admit to a couple of happy tears at I walked up Main Street after the bagpipes and Irish dancers I thought to myself "not to shabby for an emigrant who only knew 2 people here when she arrived.. now we've shut down Main Street in June!"...
We had a lovely time, great weather, Irish food, music, Irish wolfhounds, bands from Dublin and singers from Cork...the craic was ninety! (folks that is not drugs Craic is gaelic for a rare ole party!)....
We will be having the drawing for the Irish trip sometime in the summer so I'll let you know when you win lol!!
Looking forward to our cuppa tea as soon as this round of treatment is over.
Lots of love, Visitor Alison.,
Deb - what a wonderful respite; the wedding, the beach, great weather, and most of all the kids. Back to the nasty stuff now. Just rest and let it do its thing. When you're feeling bad, close your eyes and visualize the prayers and good thoughts and vibes being sent your way. Soon you'll be back on the beach.
Love & prayers Mussie
Those bmb sound just dreadful.. but it sounds like this new med is doing well,, come on,, out there "shakin it" at the wedding....How are all your welts and lumps? I hope this next week goes by fast , and you can relax and watch the fireworks knowing it's behind you for awhile...
Patrick is going camping today and Mark is leaving to eureka for yet another baseball tournament,,so i will dog sit and clean while everyone is gone..i always get nervous energy while they are gone..
Found out yesterday that i do have glaucome..(like my dad did) so now i have to put drops in my eyes..
and, i'll have to tell you about how i think i might have a crush on my gyn..whole 'nother story..ha. but suffice it to say, i am definetley being checked out "from my head to my toes..."ha..
deb.. know it's not easy, but you sure make us all proud to know you.. hang tough lady...fireworks are around the corner..
joe, thank you for the updates..enjoy hearing your voice via blogs..
love,,mdf
Debbie:
Glad you could get to the shore and enjoy that beautiful weekend and have some time with those gorgeous babies. You are always in my thoughts and prayers. May there be more sunny and bright days ahead than cloudy. Love, shelly
Dear Debbie, So glad to hear that you are having some really good days - to top all those bad ones! The shore weekend must have been just what you wanted/needed!!!! Hope you and Joe enjoy many more this summer.........We are going down tomorrow with the gang. I am not calling it a vacation, rather "family time"! Will let you know how it goes. Take care and always my prayers and love, Trudy
We're all so glad you are so faithful to the posts- we love to check in and hear how everything is going! Glad to hear the first round knocked some of the bad stuff out, here's to the second round doing more of the same- and to more dancing and beautiful days at the beach! =) Hope you're feeling a lil bit better Mrs. T.
Love from all,
The Booths
Dear Deb,
I just want you to know that I think and pray every day for you. You are never far from my thoughts. Happy to hear you had a visit with the little ones and also had some good shore time. Take care,
Love, hugs and prayers,
jean
Post a Comment
<< Home