Feverish Night
Hi all,
After having a brutal night, fever max of 104.6, where they drew blood cultures, chest xray and UA again, I was rigor-ing out of bed - I am feeling better today. I used the dilaudid drip overnight because of the aches and pains but haven't used it at all this morning. I spent a little bit more time out of bed today. ANC is still ZERO but the WBC is 0.1 - which could mean nothing - but could be the beginning of my comeback. Let's all pray this is the new beginning. I should have BMB results tomorrow and I'm anxiously anticipating them. Did I tell you that Dr. Milard said if I'm rejecting the donor cells and the donor is not available they will reinfuse with a new donor? I told him I don't think I'm up for that. God knows how long I'd have to stay in the hospital then - but probably a few MONTHS more. So I can't think about that right now, back to the old mantra, ONE DAY AT A TIME and there's no place like home. Needed a unit of blood today so that should perk me up a bit.
It's been wonderful having Jessie here. She pampers me like you wouldn't believe - back rubs, foot massages, files my nails, and is just the best company. We watched the ND PSU game together and I guess I was rooting for PSU but in the end I'm glad ND won - they played a better game. ND looked like a different team from last week, the O-line was MUCH improved. The boys will be down later today as will Joe. Joe visited the beach house last evening due to the heavy rains the shore had last week. He only had partial electricity when he got there so the electric company had to come out and fix it, which they did.
Cathy G, I can't believe you posted a comment last night after the wedding! You crazy girl, didn't you just want to drop into bed? I look forward to seeing the pictures soon - I know you are all busy. COD Eileen, have fun in Tuscon at your needlepoint convention.
About the sound, hands down - sitting in my deep bath tub at home - 1 and a half person jacuzzi - what exactly does that mean 1 and a HALF person? Me + a toddler? I love to sit in the tub and listen to the rain or be in bed at night and hear the rain fall. My favorite thing. The sound of the creek bubbling in the backyard after a hard rain and of course I love the sound of the ocean too. Very peaceful, tranquil sounds to me. Rain just sort of happens - its not angry or violent like thunder and lightning. Thank you again for all your blogs, cards, prayers, and well wishes. We'll keep you posted for BMB results.
I love you all.
Debbie
posted by Jessie @ 12:19 PM
17 Comments:
It was wonderful hearing your sweet sweet little voice ,we all felt blessed to hear you...of course you were sorely missed (half our heart gone) you are such an integral part of us..."It was a time of such splendor, charming people, good food,laughter and brave ideas..enough to entertain us for many years"...I wish I could take credit for this lovely sentiment ,but as you know it's a quote from Maya Angelou (on the plate at the lodge..remember),I cried when I saw it last nite ,and of course thought of you and knew it would give you heart and strenght to carry on...needless to say, we have many plans for next year's weekend ,and you my dear are prominent in all of them!!!Strong heart darling one ,you can do it...it's just a dot in time ..soon to be a memory..that in and of itself will be worthwile too ...it all means something..don't give up...I love you,we all love you ...and want you with us for many years to come!!!You go Jessie girl,take care of our honey for us..LOve always:)Bev
Well, the nurses weekend girls are straggling in one by one....you know we missed you, we prayed for you, we sang for you, we ATE for you...you were never far from our thoughts and you are ALWAYS in our hearts. I just got caught up on the past 2 days blogs that I missed, and as always, am so amazed at all the lives you have impacted and how you continue to do so...even from the isolation of your hospital room. So many people love you. You are the glue that holds together so many of these groups, and all of these gatherings feel your absence deeply when you're missing. You are a force!!! and I know if anyone can get thru this, it is you. So keep holding on, dig in those toenails if you have to, but hold on. We're all here lifting you up in our hearts and prayers, though we all wish we could do more. We'll keep up the chants for engraftment as we await the results. One day at a time.
Love you so, Mo
And Jessie, thank you for giving such TLC to your Mom. You are so special to us also.
Donna from the Beach....
Debbie we all want you to know that all your friends at the beach are praying for you. We miss you! I have been thinking about you everyday and was so glad to see Joe today to talk to him. I keep you in my prayers daily and want you to know that we think you are a special lady! I am so happy that Jessie is there with you nothing like having you daugher there with you! Joe was so kind to give me this blog site. I am looking forward to seeing you here in Ocean City real soon. You close your eyes and think about the beautiful ocean when things get tough. Mom and Dad, Chuck and Wyatt all send their love and will continue to keep you and Joe and your family in our thoughts and prayers.
Love you..... Donna
Oh, I forgot..the most important part..the day was glorious on Sarurday( I did not do THE WALK, but almost everyone else did..NOT REEN) so we sat on the dock and languished in the sun,talking of you and remembering good times ( the burnt underpants did get discussed and something about thongs) anyway, when everyone returned from THE WALK, we had a great antipasta ( thank you Anita Russo) for lunch, then loaded up the raft with beer AND COSMOS and off we went( Debbie Shelton ,on her "virgin Nurse's Weekend" did not raft with us ...she may have had a premonition)..we did indeed float around in giddy bliss for quite a time(we had a plan for the 5P.M. DAILY)..as THE HOUR was aproaching we noticed some dark clouds looming over the far side of the lake, then an occasional ,but distant rumble of THUNDER??? NO we said, yes we said ,what was that we said..( I was on my 3rd cosmo and I don't even drink..yeah right!!I don't know what I said)..the wind started kicking up ,blowing everywhich way to Sunday and we started bouncing around a bit..so a chorus of ,What do you do with a drunken sailor,what do you do with a drunken sailor etc,,,started up( later we found out that John,who was in painting his living room ,heard the distant"noise" and was chuckling to himself)... anyway the distant rumble got to be quite close and turned into lightning strikes and loud claps of thunder...needless to say we were trying to figure out if it was better to stay on the raft or try to get in the water and hang on ( I don't think that was ever a real option) ...but ,as you know Debs we were at the mercy of our little putt,putt battery( No motors on Silver Lake)...so we just toughed it out....don't forget, THE HOUR was fast approaching...the sky was black and someone said look and pointed to the otherside of the lake, and over the moutain lomming down through the dark clouds God had parted the sky to let a beautiful shaft of Sunshine through..that ray of sunshine was dedicated to you at 5P.M...MY DEAR.. it was a beautiful moment ..and we kept singing the drunken sailor song ( I cannot tell a lie) but somehow I knew you'd love it all and would be laughing your hiners off...we got to the dock ,finally ... Deb S was there with an,"I told you so " ,but no matter ..we HAD to be on the raft at 5P.M. and that was that!!We had a rousing ,"you go Deb girl", and hoped you'd hear it,even at that great distance...You ARE the heart of us all now..OH, I think it should be up to you to tell the "burnt underpants" story,we did get a laugh in the repeat telling of it all....I made Chicken Marsala and Penne pasta for eleven in 33 minutes ..of course there was help with the salad and garlic bread...then on to Holly's DELICIOUS pound cake ,that EVERYONE wanted the recipe for..Anita's FABULOUS apple AND peach cobbler( that she swore up untill the moment it was served ,that she had forgotten ) and I might add,and you could imagine took a bit of abuse from me,to the tune of ,"it was the one D-M thing I asked you to bring etc, etc" ( I KNEW she had it all along ,I just couldn't find it), I still don't know where she hid it...and Deb S. made her wonderful and UNIQUE bread pudding,with the Brandy sauce,,YUM,YUM ..we all exploded needless to say...WE DID have a giant fire this year...you would have been happy as a clam snuggling on the CHAIR that we all fight over( we decided it's all yours next year!!)Anyway, honey even though you could't be there I hope this little??recounting gives you the picture and the desire to GET THERE next year..YOU CAN DO IT, YOU CAN DO IT!! WE of course missed you ,but look forward to another great time with YOU in the middle of us all, next September...Love and GOD's blessing ..He IS with you love ,have no fear XX OO :)Bev
Chizzie - keeping the mantra going here, honey bun. And I like Bev's phrase: STRONG HEART, darling one. That's perfect for this day.
Because today's thread has been magnificent. And we're only up to 4 comments? Holy Moly! Bev and Mo your play by play of the Mountain Wimmen weeked were wicked good.(Have to admit to modest seepage on this end as I read them.) Debbie, I know you are loving these stories and they are doing your heart good. God bless you Jessie for your loving tender care of our good friend and your sweet mom. Travel safe back to DC. It looks like I'll be down there next week - would love to hook up??? Maybe? Call or email either way?
Love to all. K
A woman, standing nude, looks in the bedroom mirror and says to her
husband, "I look horrible, I feel fat and ugly. Pay me a compliment".
The husband replies, "Your eyesight's damn near perfect". He never heard the shot...........
Dear Debbie,
Getting ready for the 5pm conference call.. I have a house full of males watching football by the pool (Did I tell you I live the American Dream.. I grew up in Public Housing in Ireland and I now have a massive inground pool where much entertainment takes place!). Anyway I have wonderful news today.... my friend Linda who had a second operation for breast cancer just found out that they found NO FURTHER cancer.. I'm so happy I could yell from a roof top. I know the prayers of FODs et al really really helped. So as soon as I spoke to Linda I knew you were going to get better news.. it's the weirdest thing, can't explain it.. but I BELIEVE with all my heart that you are slowly but surely turning the corner.
I'm with you on favorite sounds Debbie.. water... rain, ocean.. How wonderful to have Jessie with you and pampering you.. Jessie we need to hook up since we are so close.. I'll pamper you and you can pamper me.. hey.. does anyone detect a "girls slumber party" coming on! I sure do....
Got to go Debbie.. it's 4.56 and I'm in the office and since folks are already drinking I don't want to ask them to join the conference call as his nibs might not want semi-drunk football fans clogging the line....
I'm praying with all the other FODs for more good news tomorrow.. Lots of love visitor Alison
Debbie & Joe,
We were sorry to read that you had another bad night, but the wbc reading of 0.1 can be encouraging. Let's hope that the wbc reading is not within the accuracy of the test (wbc count)instrument. Forgetting the engineering speak, we are taking the optimistic position that the "wbc count is on" & hopefully the readings will begin to rise exponentially daily. After all, it took the wbc a litle while longer to "show up" than desired, so having taken the extra time, they should have engrafted with greater strength. We sincerely hope that this is the case, so we can forget about another donor, etc. We thank Jessie for providing the special comfort required after being in isolation, & away from home, for such a long time period. Yesterday Joe called & left a message (we must have been saying goodbye outside to Rick & Shane) stating that "we must all be in mourning after the ND-PSU game" among other things & that he would be at the shore today. In retrospect, ND was the better team yesterday, but we'd like to know the name of the lousy ref (probably from Ann Arbor, MI)who can't distinguish between a legitimate down field block & a clipping penalty. That was a lousy call, period!! We went to the Cock & Bull for dinner today since no one was available to take advantage of Mom's every Sunday "open dinner" invitation for family members. "Nuff said"; we hope that you have a restful night & that tomorrow the wbc reading will be a 1.0. You remain in our thoughts & prayers, Mom & Dad
Hello, Deb...
As always, I'm reading every note, and thinking of you all the time. "One day at a time"... is good..."baby steps, baby steps" works too, but my favorite was (and still is) "no one single second is unbearable"... hopefully you can bear this scourge one second at a time, and go on to the next second, hopefully an easier one to bear. I pray that you can remain strong... you're my inspiration.
Love to you. Lizzie
Mrs Teklits,
So sorry you arent feeling better.. Hopefully the 0.1 will cont. to increase and lead you on a path to recovery! I am praying for good results from the BMB tomorrow... hope you are sleeping well tonight.
ALL MY LOVE <3
Alli
Good morning Debbie -
So glad to hear that you spent time with Jess this weekend. Hope that you are feeling better. And know that we are all saying our prayers for you. Just being around the family is a good dose of medicine for the soul. I know that I love spending time with my girls.
This weekend Kevin and I had a restful, quiet weekend at the shore. The weather was the best! Tthe girls all had plans for the weekend and couldn't join us. Joan flew out to see the ND / PS game in person. She kept sending pictures to us so Kevin and I felt like we were there too. Saturday night we drove to O.C. and walked on the boardwalk, stop to have our first piece of Mack & Manco pizza for the season. It was great, infact we had several slices of pizza! After that we walked a little farther down the boards and had ice cream. Drove by your beach house on the way home and it got me to thinking how you met Joe. I know that I met Kevin in junor high school but couldn't remember when and where you met Joe. Good question for the bloggers - where they met their otherhalf's.
I have to tell you that I met the "birdman" (an older man that feeds the birds on the beach each Saturday and Sunday) we got to talking and I told him about you. Well I saw him again on Sunday and he said that he too prayed for you at Mass. Another voice to God's ears.
Have a restful day and get well.
Love,
Donna Tea Bags
deb: sorry about the rigors, i know how they feel. i agree with you about dreaming of sitting on the porch and listening to the rain and the creek. when i was in the hosp., i dreamed of sitting on the back porch and hearing the crickets, or the wind in the trees, and looking for deer. yesterday i went to my aunt millie's 89th birthday party, allthe family was there, she was very proud. today is another day closer to coming home. we love you. bob
Hi Chizzie-
Hoping you had a rigor free night and I second Bob's emotion that you are one day closer to being home! Keeping the vigil for good news today, too.
Wish I had some good news to report here - not much going on - just the usual routine. Just wanted you to know that I am thinking of you. Praying that your wbc count is on the rise too.
Loved hearing that the 'bird man' of OC is praying for you! Donna teabags weekend sounded swell didn't it? I would love to hear how you met Mr. Joe. I know it was in high school but I don't know the particulars.
Guess I'll go first with my FOD meeting the other half story
I met the Big Man in high school too. I used to do yard work at the Masonic Temple to make extra cash. One hot summer day (think me about 25 lbs lighter in 'hot pants' pushing a lawn mower.)I was mowing their lawn when I saw a car pull in across the street at my cousin Greg's house. I didn't really pay much attention to it at the time. I was too busy trying to keep my rotten mower running (no riding mower for me!) I was finishing up when my cousin came over with a couple of guys to say hi and Mr. Hal was one of them. A couple of weeks later one of my gal pals said "Hey, Don Marvin wants to go out with you, are you interested?" Hmmm. I had just broken up with dream boat, Kelly Westover, heck yeah I was interested. The next thing I knew I had a date for Homecoming and the rest as they say is history...
A couple of years ago I figured out what Mr. Marvin's big attraction was. It wasn't the hot pants. No, it was the fact that I was willing to do yard work! After all these years, Jan, my sister in law, happened to mention that when Mr. Marvin was a teenager his big job was mowing the lawn. He hated it. Hated it so much that he swore he would never do the yard work when he had his own house - guess what? He found a girl that would! (He does not do the yard work to this day and I have since contracted the cutest lawn guy in NJ to do the job. His partner is his twin brother - hehe. So they are double cute... and my lawn looks pretty darn good too.)
Love you honey!
K
Morning Deb,
Hope you had a good nights rest. I was relegated to the guest bed last night, as I have a sore throat and teeny fever. Came on Saturday night at Lees', so I missed Aunt Millies do yesterday. But Bob drove down and he had a great time w/ his family. I was worried about him driving, but he did fine. Anyway, sleeping in the guest room is okay now that we have the new mattresses. But I found myself dreaming of you last night...it's a little fuzzy, but you were in your kitchen, post-sct, and doing fine. So I'm taking that as a sign. Oh and another sign I forgot to tell you about...saw many wild turkeys on the way to and from Lee-lees'. Like Kris says...coinky-dink? I think not.
Loved Kris' story about meeting Hal...I forgot his given name is Don. Another story there, or maybe just a middle name? Inquiring minds etc...I'm gonna save our meeting up story for later. Need to get on the stick and down to the wash. Love you honey. Praying for good results as we wait.
Love, Mo
I have to add that on Sunday the wind started to kick up a bit and "Bird Man" came down to the beach for the last feeding. He saw me sitting all wrapped up in a beach towel and came over to talk to me. I told him that I was freezing and was getting ready to go back to the beach house. Well he came and stood VERY near me and told me that he was cold too and maybe I could warm him up! He was a loveable little person but that would have been a no-no! I told him that it was getting to be almost 5 p.m. and we both needed to go home to our own houses and pray for Debbie. He smiled and said that he was on his way!
Subject: laugh of today
An 85-year-old man went to his doctor's office to get a sperm count.
The doctor gave the man a jar and said, "Take this jar home and bring
back a semen sample tomorrow." The next day the 85-year-old man
reappeared at the doctor's office and gave him the jar which was as
clean and empty as on the previous day. The doctor asked what happened
and the man explained: "Well, doc, it's like this - First I tried with my
right hand, but nothing. Then I tried with my left hand, but still
nothing. Then I asked my wife for help. She tried with her right
hand, then her left and still nothing. She tried with her mouth, first
with the teeth in, then with her teeth out, and still nothing. We even
called
up Arleen, the lady next door, and she tried too, first with
both hands, then an armpit, and she even tried squeezin' it between her
knees, but still nothing. "The doctor was shocked! "You asked your
neighbour?
" The old man replied, "Yep. None of us could get the jar open."
Dear Debbie,
It's nearing 5pm and I have been and will be in on the designated FOD...special prayer session for you.
God Bless you and may Our Lady keep watching over you.xoxoxoxoxoxoxoxoxo
love, tessa
Post a Comment
<< Home