Congratulations Sarah and Cyrus!
Congratulations to Sarah and Cyrus for getting married today at 5pm. How I wish I could see them walk down the aisle, having been to four of the other weddings. All of the Goodyear girls look like models and everytime I see them together I'm taken back to when they were babies. It's a beautiful day we wish them much happiness and joy and a joyful life together.
Lee's mountain girls, hope you're having a good time up at the lake. It's warm so you must be able to do lots of water events. Anyway tried dropping off the tree from the rope? Seriously, us older folks shouldn't be doing that and Bev, you shouldn't even be hiking with your hip, foot, and back surgery! Wish you fun fun times, lots of laughter, and good food.
Jessie's been here since yesterday and is typing this for me today. It is so nice to have her here although I'm sleeping most of the time. Even with weening the dilaudid I can't keep my eyes open. They started me on an additional growth stimulating factor so along with the neupogin which stimulates granuolcytes, this new one will stimulate macrocytes. Still no white count or ANC and no results from the BMB. Dr. Milard said they are hoping to find ANY stem cells in the marrow - mine or the donor's. Of course if they just find mine that will mean the transplant was ineffective. They are hoping to see a percentage of the donor's cells (engraftment) which can happen in the marrow before it becomes apparent in the blood stream. So the bottom line is, sorry to say this, but I still feel like crap. EVERYTHING hurts, I've been running a fever for four days, 100.4 is the max. The doctors don't think its an infection since my UA and chest XRay were clear. Still waiting for the results from last night's blood cultures.
I appreciate your blogs and your faith in me and my ongoing strength. If you were here with me, you'd see I'm beginning to unravel and getting quite weepy. I just want to go home, that's become my new mantra. So we'll see what Monday's BMB results bring and if the donor is willing and able to donate additional stem cells. Please continue your prayers and I'll continue mine. I have to get back to the 'one day at a time' mantra. Thanks for all the cards, prayers, and blogs. Be assured someone is reading them to me every day.
I love you all.
Debbie
posted by Jessie @ 3:07 PM
8 Comments:
Dear Debbie & Jessie,
Thanks so much for keeping us posted in such difficult tiring days. Today I planted Mums in the heat and weeded the garden as I'm expecting 4 visitors for "baseball" trip. Entertaining my father-in-law, Uncle, brother-in-law and cousin they usually travel to a different baseball park together once a year this year we decided to host it in MD so they can visit Camden Yards in Baltimore. When I got tired I said to myself.. get going lazy butt think of what Debbie is doing to manage 20 minutes on the bike get moving you wooz Alison! So ya see you are inspiring us all Debbie in small and big ways. Imagine the wedding will be at 5pm today also.. I have no idea what made me pick 5pm every day for the prayer conference call.. but I am looking forward to hosting a "virtual cocktail hour" once we get the good news about your White cells....I'm singing to the old world war 2 tune of "we'll meet again"... our in our case Debbie we will meet some day....
"Keep fighting through,
Just like you always do...
till the white cells come along
some sunny day.."
It's 14 minutes to conference call.. my neighbors are dropping over for burgers by the pool at 5pm... little do they know they are about to join a conference call to heaven....
lots of love Debbie, from visitor Alison
dear darling deb,
you may not remember this story but...the first time that the kids came down to see mary in the nicu shaun was barely 3. he looked at me and said "i know how to fix the baby" and he started to walk towards me [i was holding mary] and he said "i'll just pull all of this stuff off her"....that's how i feel now. have faith deb that there is good waiting for you around that proverbial corner. you just can't see it yet. i miss you. i hope you are getting to see your beloved college teams play, is that a conflict for you? thursday a big rv pulled into the mill, it looked like a chinese fire drill - a bunch of people came in like ants and swarmed the beer cooler and chip rack. you know they were pumped and going out to indiana. thinking of you always, dreaming of you coming down tennis way soon. practicing my moonwalk for the back deck. love you oxoxoxoxoxoxo
Hi, Deb and Jessie. Here we are with our oldest girls with us. How wonderful. What would be more wonderful is if the four of us were together! We will do that when I visit Jen in DC after she is located. What fun times we had Jessie and Jen when you guys were little! How smart you were (and still are!) and how proud you've made us. Keep up the great work you are doing taking care of mom and your husband and wonderful children. Love to you both this day (I am sure you are so disappointed that ND is winning -- I even prayed that the Lord help Penn State today for all of you). Keep up your strength while we keep up our prayers. Love, Cheryl and Jen (Crone)
Debbie & Joe,
Well, the best news thus far today is Jessie's being at the hospital & we're sure that she's keeping the HUP staff "on the ball". We won't say much about the ND - PSU game than to say that it was a longer afternoon than anticipated. We continue to hope that they see the beginning of a wbc, anywhere, in the bmb, or blood tissues. We can readily see why you would be getting discouraged, but you've fought a good, courageous fight thus far, & it may be only at the halftime of the battle. If anyone can do it, you certainly can. Our love & prayers continue to be with you, Love, Mom & Dad.
Der Deb and Joe and Jessie;
God bless you Jessie, for being there , I dont know how you do it.
Your whole family amaze me. I wish I could help you.
You are all in my prayers. I did the 5pm blessing.
Love you all
BUG HUGS
Your Aunt Angie
My dear Debbie--how we missed you and Joe tonight. We had a wonderful time, as we always do, but you both were sorely missed. Sarah looked radiant, I will forward pictures as soon as I can. All the girls looked wonderful, I am so proud of them.
I interrupted Jim's speech tonight, it was definitely my turn. And I shared with all our guests just how important my friends have been to me throughout the years. Yes, I'm fortunate to have a wonderful, loving family. But you know you, Deb, and all our "ladies of the club" mean so much to me and are the reason I've been able to successfully raise five wonderful kids.
I miss you so much, sweetie, and can't wait until you feel better. My thoughts and prayers are with you tonight (it's almost 1am) and I'm hoping for some WBC real soon!
Love,
Cathy
Deb:
Sorry for such a late blog. And it looks like all of the FOD's were busy elsewhere today. Many of us at weddings. I just returned from one. Must be a popular date.
Thank heavens that Jess could come up to visit. The boys could get their fill of football at home while she kept and eye on you.
Deb...I know this is all going to turn around. I remember just the other day thinking I couldn't imagine that you were going to feel this good all the time. What was I thinking. I can't imagine how disgruntled you must be being all couped up but I really feel that the BMB results will bring ease to the situation. You did say they would inform you on Monday right.
I leave in the morning for my annual needlepoint seminar. I have been going for 3 years now with a friend who now lives in Dallas. Last year it was in Nashville and the year before in Minneapolis. Tomorrow I head for Tucson. I am looking forward to seeing my friend Kathy and having some quiet time but gosh...I sometimes wonder if it's worth missing 3 of the kids games and all the details that go with keeping everyone on top of everything. But as you know...I married a prince of guy.
OMG Visitor Alison...now what time will my prayers need to be said. I think they may be 3 hours behind you east coast folks.
As far as my favorite sound...I did like the comment about the rain...we have had so little this summer...the laugh of a toddler...I really like the sounds in the morning when I have time to sit outside and listen to the bugs and the birds. Awww! the country.
Sorry to hear about Penn State and it looks like Colin's favorite team Texas got rocked.
But both boys won their games today. Yippee!
Stay strong Deb! Enjoy your time with Jessie.
I will be checking in from Tucson.
Love ya! COD Eileen
Morning Chiz-
Thinking of you on this Sunday morning. Especially when I read the Daily Word. Uncanny! It's another one that seems tailor made for you on this day. One day at a time as Jess says...
Also praying that a swift connection be made with your donor in case you need another dose of cells to give you a boost. Praying for divine right order to help us out there as well.
Hope you had a restful night and were able to get some sleep and a respite from the pain.
As always, I am thankful to Joe, Jess, Joey and Mike for taking the time to post on the blog. God bless you guys.
Love you honey. K
Praying for You
I bless you daily in faith, in love, and in prayer.
My prayer for you, beloved, is that you are always strong in the strength of God, that you are wise with the wisdom of God, that you are rich with the blessings of God.
Most of all I pray that you know the presence of God as your constant companion, that you walk the path of peace, that you live from a heart of love.
My thoughts of you are ones that envision you whole and well, fulfilled and free. There is so much that you have to offer as you give expression to the divine qualities within you.
I trust that your knowing you are held in my heart and in my prayers brings you comfort and joy. I send my love to you in thought and prayer each day. I am standing with you in faith and supporting you in prayer.
"We have not ceased praying for you and asking that you may be filled with the knowledge of God's will in all spiritual wisdom and understanding."--Colossians 1:9
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