Im getting tired of this!!!!!!!
Dear loyal, fods, cods, gods, and rods,
Mikey is typing this for me after he read all of the blogs. It took awhile because i kept nodding off to sleep. I so appreciate your stories and chants and songs that you have invented to bring on the wbcs. White count is still less than .1 and ANC is 0. Blood and platlets are stable for now and will probably need them tomorrow. I am so overcome by fatigue i can't begin to explain it. I have to drag myself out of bed to even sit in the chair, but I am still doing 10-20min on the bike and my leg lifts. After the exercises, I have crawl back into bed for a quick nap. I asked the doctors to remove the continuous dilaudid drip. The doctors were hesitant because my throat was so inflammed. They also said if I got gastritis or worsening of the esophogitis it would be in order to have the dilaudid on hand. So now i just push it when i need it, but do not have it continually. It has completely confused my bowel and bladder, I dont even go when i sit down. It takes me twenty minutes and running water to get my started. I am so glad that you picked 5pm for our gathering prayer. It was nice of alison to suggests a few moments of silence for me. That was the exact time that I have the bone marrow biopsy yesterday and I think your prayers helped me through the procedure. So i am not being a defeatist (is that a word??) Just tired tired tired.... Bev I loved your story about the white rabbits at the goddard school. That must be a sign... I am glad jen is staying healthy, she is in my thoughts and prayers everyday. You girls have a great time at the mountains. It will kill me not to be there but definately another time.
As for tomorrows big game between the Lions and Irish, I am definately rooting for the Lions. I am still made at ND for firing Ty. (my mom just nodded out and was talking about the Chiefs running back...maybe an LJ omen about the lions...WE ARE....PENN STATE....)
I am hoping to recieve preliminary results later on today about the BMB, if not I will have to wait until monday. I will keep you all posted and thank you again for all of your love, thoughts, and prayers.
Love, Debbie
ps: LETS GO STATE
To Rick and Bob
Watch for a fly pattern to D-Will. ND hasn't seen that kind of speed since reggie bush. Last time i checked bush had 515 yards of total offense that game.
posted by Joe @ 3:42 PM
11 Comments:
Dear Deb, I hope you get some good results today! It would be great to have some good news, you certainly DESERVE it. Milana went to the doctor yesterday for her check-up, she weighs 24.6 lbs. She is in the 90th percentile for her weight. Actually I thouht she weighed more than that. Gina is in St. Louis for the weekend. We can't wait to visit with you. Hopefully next week. I'll call you on Sunday and tell you all about the wedding on Sat. Please hang in there. We're all praying for you, love, Mary
Dearest Debbie,
Needed to check in on you after the 5pm conference call.. there was static on the line due to all the tune ins! Imagine you had the BMB yesterday at 5pm.. again, no coincidence I would say that we all were praying for you right at that time.. cause lets face it, trying to time anything with HUP time is impossible! I hope you get the good news today (it's coming believe me!).. let's see signs... still finding the pennys from heaven... I'll have a chat with our friends above and see what other reassurance they can send us. You are amazing, the level of effort you are putting in is second to none. I'll be checking in over the weekend and praying for you at 5pm every day (plus morning noon and night!).. lots of love, Visitor Alison
Hi Deb,
I can't imagine how you even can sit up, let alone do leg lifts and bkie ride...on dilaudid and no wbcs...it makes me want to take a nap just thinkin about it. You are so strong to even try.
Well, we were down to se Dr. L today, and I desperately wanted to see you, but after waiting TWO HOURS in the waiting room Bob had had it, plus he hadn't eaten before we went so he was starving. While we were waiting I kept saying maybe I should run over now, but you know the minute I left he would've been taken back to see her. But the minute you want company I will come down. My parents are on their way home now, so I think things will settle down around here now...but I digress. Bobs counts are stable...plates still only in the 20's, but wbcs are 3.3 and hgb is over 11. The big news is that in the preliminary matching the computer has picked out 700 donors for Bob. Now that is only the "first tier" factors...they keep putting in more and more factors to match up and than keep whittling down the matches, but Selina seemd really happy w/ that number. They can't really give us a time frame(and why bother even asking since it's always HUP time), but they said it will probably be at least another month just to get the match, and you know how much longer from there. So we're probably looking at November...at which time you will be happily ensconced in Tennis Way and writing to Bob on his blog, asking him how he can eat the disgusting HUP food!!!
OALN(that's...on a lighter note, Kris) Sam sent us some pics from the wedding, but we are unable to open them. He's going to give us the disc at A.Millies on Sunday and than we will be able to send them to you(I hope). I may have to ask Al for help! I'll put them on Bobs blog too if I can figure that out.
Oh and I forgot to tell you that we got your beautiful card and gift yesterday...FODs, isn't this typical Debbie--to think of others while she is going through the fight of her life? We will not be using the gift certificate however until you and Joe are able to be sitting across the table from us. Sent our prayers up this afternoon that it will be soon, soon, soon!!!
Well, I've used up more than my share of words, so I'll just say I miss you like crazy and I love you, Mo
Hey Deb and Mike:
Thanks for the update. I keep hoping each day that the word will come down but alas nothing today.
Good news from here. One of Colin's classmates who is 4 years post osteosarcoma in her leg had a little scare. They had found some spots on her lungs and while awating a PET scan gave her antibiotics with the hope that is was pneumonia. Well today she had the tests and no spots. What a joyous day for Shannon...only at 15. She is tough and her uncle is the archbishop of Milwaukee...no doubt he pulled some strings with the big guy. He also took Shannon to Lourdes France while she was being treated 5 years ago.
There you go Deb ~ a trip to Lourdes once you get past this awful phase you are in.
It just saddens me to see you in so much pain. Know that we are praying like the dickens here in Wash. MO.
Love you all to pieces...Go Lions...
COD Eileen
Dear Debbie, You are AMAZING!!! Keep up the good work and you know we are keeping up the prayers. I was trying to think of a good joke or event from the bank to tell you- but it was rather quiet(a good thing). But I thought of you since I was wearing the sun dress we bought at RICE'S years ago. It is still one of my summer favorites. Put that on the list of things to do.....shopping at Rice's! Enjoy the game tomorrow - maybe that will jump start something in your body!!! Always lots of love, Trudy
Hi Chiz-
5pm bmb yesterday?
5pm Cosmo Prayer Hour?
Coinky-dink?
I think not.
Like Allison said ,there are no coincidences in this world.
Only divine right order and the grace of God. I truly believe that this is what is happening here...Hang on, there are miracles in the air.
I almost hate to say it because I know it will make you want to whip my biscuit but I had 5pm prayer service at the Four Seasons afternoon tea this afternoon. Not exactly at 5pm, more like 5:03 you know me, always a few minutes late. Heck, three minutes late is good for me.
Luckily, I had the Daily Word with me and was able to sit quietly and read in between sips of tea and Roederer champagne. I felt your presence. I hope you felt mine.
To say that you were MISSED would be an understatement of the first order. The weather is beautiful and the fountain across the street has been closed for restoration for so long I had forgotten how beautiful it was. It's back up and running now and it is so beautiful at night!
I hope we can see it together soon.
Don't be stingy with that pain meds! Don't let it get too far ahead of you - remember pain management is the goal, not being doped up! It sounds like you are keeping your wits about you and are doing so great with your exercise regime. You have to be the number one contender for the MODEL PATIENT AWARD.
And when you sit down to go p** just envision a cow p**ing on a flat rock. Maybe that will help?
You are not being a defeatist in any shape or form. You are being a HEROINE of the first order and don't you forget it! I am so impressed by your grit and determination. Awesome.
I too, loved Bev's story about the rabbits. Please note that I had another Tippi Hedren birdswarm moment this afternoon as I left the house to come into City Center. More starlings than I could shake a stick at. It was doggone spooky!
Man, I've never made the 'Girls Trip' but after hearing your stories I know you must want to bug out not being able to attend this year. I bet they'll be talking about you! Ha-ha. Is that where the burnt underwear story is from?
Who is going to crack and tell us the untold story...
I love you honey. My prayers are with you and I hope to see you soon. K
P.S. Mikey - you had a lot of blogs to wade through! Thanks for your analysis of the game. Who do you like in the OSU-Texas match up?
Dear Debbie. I know things will be on track in a couple of days. I am sure you never thought you would be rooting against ND. But you have every right to today. Terry is heading to the game and Jenny and I are here finishing up her packing and bonding one last day before she heads to California tomorrow morning and then off to Asia before her final destination in October to DC. I know I should be happy, but am so sad. I will try not to show it. I always think I show my girls too much emotion over the years -- seeing me cry too much. But that is who I am, especially as I get older. My prayers continue to be with you and know I love you. I think it certainly is God's hand that had us meet on Renfrew Dr. -- you have taught me so much over the years! Love, Cheryl
Dear Debbie,
I am following your posts eagerly, hoping, of course, to hear of a little bump in the numbers.
I've added you to my church's prayer list. I hold the record for being on it the longest! :>) God in His mercy has answered all those prayers and given me a miracle. He's still doing miracles every day. So we're asking Him to give one to you.
Love, Linda M
Debbie,
Checking the blog everyday and hoping that each day we'll see the good news that your wbc's are heading up. We know it will happen soon (but not soon enough for you) especially with all the prayers that are coming your way. Know that you are in our thoughts and prayers constantly even though we haven't written in a while. Carolyn is usually the first one to give us your update each day since she is usually attached to the computer more so than the rest of us. We are all pulling for you and are amazed at your strength, spirit and physical stamina!! Can't believe you are still using the bike when you must be so tired...you are a model patient!!
I read Trudy's message (we still play tennis every Tues. am and will be thinking about you on the court)and she reminded me about Rice's and the time you took me there. I had never really experienced Rice's except for Jeff's framing parties at your house and you asked me to go with you...the mayor of Rice's, I was honored. Remember we arrived and you were driving Joe's new car and we saw that perfect parking spot and the next thing we knew, there was someone else moving into our lane and CRUNCH...it was only a small? dent in Joe's car. (Sorry Joe...hope you are not hearing this story for the first time!) But in typical Debbie fashion, it never flustered you and certianly didn't ruin your day and after all the accident formalities were taken care of....off we went for a great day at Rice's. I would have been a basket case after getting in a fender bender, but you were as cool as they come. Now I realize why you are able to handle your current situation so well! As Trudy said, a trip to Rice's is in order, but this time I'll drive!!
And about the big game today....I was happy when I came home from work yesterday and noticed that Mikey had a PSU Jersey hanging in your front window!! You know who the Law's will be cheering for!! GO PSU!! Bob even sat in the rain last weekend to watch their first game...but it was worth it. We love ND, but not when they play PSU. Hope you are pain free and awake enough to enjoy the game. Remember...when we cheer for PSU today we are also cheering for you. So Go State...Go Debbie...Go WBC's!! Love and hugs from all of us. Karen & Bob
Hi Deb, It's Sat. afternoon, we're going to get ready to go to the wedding but I wanted to check the blog to see if there was any news on the biopsy. I wish you were going with us today! I hope you're feeling better today. Love you lots, mary
Hello Chiz-
Just checking in this afternoon. It was good talking with you and I am SO sorry you are still going through this terrible rough patch. I hope the Doctor visit this morning went okay and that they have a few more tricks up their sleeve to help your condition improve - kind of like those white rabbits out of Bev's magician's hat.
I continue to pray for both you and your medical team, asking that their treatments be wise and timely, their approach to your care, compassionate and kind.
I hope you feel well enough to relax and enjoy the game tonight. I know how much you like the football.
Oh BTW, (by the way, Mo!) I forgot to tell you this morning that I slept with Sylvester Stallone last night. Ha-ha! Old Sly was in town for the dedication of the Rocky Balboa statue at the Art Museum last night and stayed at the Four Seasons.
It was funny because yesterday Mr. Hal and I both remarked that we thought somebody famous was staying in the hotel because of the increased security and the large number of managers lurking about.
Sure enough this morning when we checked out there was a small crowd of autograph seekers and a large detail of motorcycle cops and limos clustered around the front door. The doorman give us the lowdown on who the celeb was and I saw a picture of the statue in the Inquirer. It looks very cool. I'm going to look for a photo on the 'net and email it to you so you can see it, I think you'd like checking it out. The pic in the paper is from the back and it looks marvelous! Woo-hoo.
Kind of reminded me of Thunder and Lightning Chippendale Joey!
I know you are feeling pretty beat up like Rocky got during this latest round of this fight, honey. We're all cheering for you to power your way through this any way you can. It might not feel like it just now, but you are in the right place and doing the right things. Just keep the faith. We're all praying for you...
You know I love you - K
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