More of the Same
Dear Fod's,
Nothing much to report today. Counts have remained the same @ .3 wbc and 240 ANC. Spent 4 hours out of the room today for the Interventional Radiology procedure. They readjusted the gall bladder drainage tube and they say that they did what they wanted to do with it. Debbie is still retaining fluids and is very uncomfortable.
After they completed this procedure, they wanted to do a CAT scan of Debbie's abdomen and an ultra-sound. They are now concerned with Debbie's bilirubin (phonetic) which suggests some new/further complications with her kidneys and liver? They said that the scan was scheduled for 6:30 -- which we now take for a complete joke down here and we pushed back abit. They would have had Debbie out in the halls half the night waiting for 6:30 to arrive. Thankfully, our nurse, Nicole, was able to get the scan rescheduled for tomorrow morning, first thing. If anything could happen on time down here, the first thing is the best spot to be in.
Debbie is exhausted and is sleeping soundly. She was able to wash up after her procedure and get into fresh PJ's and sheets before falling asleep. Looks like more of the same for her tomorrow.
Debbie sends her love to all.
27 Comments:
Dear Debbie & Joe,
Thank you so much for keeping us posted. This is just not fair and you did the right thing pushing the test back to tomorrow. What craziness HUP puts people through, I've never know a hospital like it either side of the pond!
How is Debbie doing on nutrient, with all this pain, sleeping and procedures she can't be getting much, I know how important it is to have the right "fuel" to fight things.
Rest Debbie, thankfully your wonderful family will have shovels in hand to rattle the cages for you and protect you in this weak time. Darn it, darn it.
Lit the light over my stove at 5pm to sing for you today, God Bless Debbie, Joe & all the T's.
Lots of love visitor alison.
Dear Debbie and husband,
Tonight begings the CCD sessions at St. Maria Goretti. I will be teaching 6th grade. Please know that prayers will be offered each Tuesday of class for you both. You and your family are in my thoughts. Wishing you a good night's rest, temps that are normal and,(a big one,) a scheduled procedure that is done on time. God bless. Ruthie McGinnis
Hi Deb,
Just thinking about you. Hang in there.
sending a little prayer your way.
Rest and heal.
Debbie & Joe,
Let's hope that whatever the issue is preventing the fluids from draining will be corrected soon. The staff has had only a week now to solve this problem w/o succcess. Good for you resisting the 6:30 PM scan; however, watch out for the "guaranteed ovennight delivery" transport team. Let's not let them pull another one of their extended hallway delays. We hope that you have a restful night & that tomorrow has the making of a good day. You remain in our thooughts & prayers. Love, Mom & Dad
Oh Deb,
4 hours for a procedure...no wonder you are asleep. Hope you were pushing that dilaudid in when you were down there...whatever it takes to get some comfort.
I just finished typing a long blog on yesterdays page...guess I was writing at the same time as Joe. It just takes me so dang long to do it. Anyway, I wanted to ask all the FODs to go back and read it b/c I wrote about the LIGHT THE NIGHT walk for the Leuk/Lymphoma Soc. that Meg is doing, and I don't want to take up all that space again over here. Oh and I went back and checked and saw that it's Cathy and Sarah Goodyear(sorry, don't know your married name)who are walking in Philadelphia. I totally missed your blog that night Sarah. So, check it out. I have this vision of all the FODs walking and singing...this little light of mine.
Hope you continue to sleep soundly through the night and really do go "firat thing" in the am for your CT.
Love, Mo
Thanks so much , Joe...
Deb...Thinking of you every minute.
love... . LK
Deb,
You are in my thoughts and prayers.
Bonnie Miller
Deb and Joe,
So so sorry that you still have to suffer. I hope and pray that the fluids start draining and you get some relief. Just keep pushing that pain pump and get your rest. I hope all the tests go well tomorrow and you have a much better day. You are in my thoughts and prayers.
Love,
Jeanne
Deb & Joe:
Again, I'd like to yell at Deb's internal abd. organs to stop misbehaving. These symptoms could be for many different reasons & are the most uncomfortable. I was happy to hear Deb was able to get washed up & into fresh clothing. I wish she was cozy in front of one of Joe's perfect fires sipping tea. Someday.... Love you, love you, Lee
Debbie,
One set of footprints in the sand...
Your family & friends & your saviour are carrying you now.
Soon you will walk in the sand again.
Just checking in and sending my love. Hope you have a restful nite.
Always thinking about you!!!!
Love Jill
Oh Honey, its just not fair...I keep thinking ,"this will be the day"and add a string of good things that will happen...going down to IR is certainly not in that category..but hopefully the a"adjustment" will do you some good...Joe is a brick(I mean that in only the best of ways) thank God he is there for you and so strong..strong seems to run in the T-family....honey ,my prayer for you tonite is that you get some good rest and that the A.M. CT scan will be done in a timely fashion and that your pain is in control(push that pump..would that I could...I would push it for you!!!)I HATE PAIN, I HATE PAIN...IT DRIVES ME INSANE,IT DRIVES ME INSANE...it drives me insane that you are in so much pain...please use the pump...I know you are in a drugged stupor saying ,"oh Bevie ,shut the H up,if I push the pump I won't be able to have a BM" or some such...even when you are stuporous you are soooo darn cute....sweet dreams darlin ( I can see you all curled up like a little kitten snug under your duvet,in your clean sheets and P.J.'s)at least you had the strenght to do that!!! Can you eat anything yet ,or at least drink something yummy???I certainly hope so,Ollie!Still singing and praying and asking God for His biggest bestest blessings ever Love and hugs XXOO :)Bev
joe, i usually use the blog to communicate with deb,but i would like to tell you something. over the years i have watched you chop the wood, build the fires, polish the apples and pack the lunches, i have seen you pick up the kitchen stools so you could do a good mop job on the floor. i have watched you entertain all of us fods with cosmos and 'bar food' - heck, you even came curbside with cheese and crackers. my favorite is seeing you, deb and mike walk to you car in the mall parking lot and you holding the umbrella over deb's head. i have always thought you and deb have enjoyed an enviable relationship. we all know that you still make her heart skip a beat when you walk into the room in your lawyerly suit. All that said, my admiration for you keeps growing. Our Deb deserves the best in these tough times and you are her knight in shining armor. Thank you for taking such good care of our debbie. Thank you for taking care of us through this blog.
Deb and Joe, I keep hoping that I'll be reading about a good change each day . . .and I'll keep praying that it happens, and happens quick! Damn it, I'm tired of you being in such discomfort and pain. It reminds me of the words of wisdom given to me by Amy's pediatrician about teaching children that life isn't fair. He said "Everyday is a shxx sandwich, and each day you have to take a bite." Kind of harsh to tell a 3 year old, kind of harsh for a 50 something year old too. But now I know what he meant, you shouldn't be so sick!
As Mo mentioned in her note tonight, Sarah and me and Audrey will be walking in the Light the Night Walk in Philadelphia on September 30 for the Leukemia and Lymphoma Society. We're walking for you, Deb. Since we can't be there to hold your hand every day, maybe we can raise some money to help find a cure for these awful diseases. It's not much, but it feels like we're doing something. After just two days, I've already received over $300 in pleges. There are some generous people out there.
If anyone wants to check out their website, here it is: http://www.lightthenight.org
Love you Deb.
Cathy
That anonymous blog just said it all. Not much more that I can say other than I think about you all day and check in off and on to see if there is any new news.
Deb and Joe there has to be a bright side just around the corner. Hang in there.
Love to you all COD Eileen
Dear Deb- I'm so sorry to hear you are still so uncomfortable- I wish you could be home drinking cosmo's with us!!! soon I hope. In the meantime use that dilaudid as often as needed. I am surprised the doc's even have the guts to mention more chemo and radiation right now. You need to rest and recover. I'm hoping things will turn around just like last time. Sleep tight, better days must be ahead. I think of you always. When I wake at night I think of you and hope you are resting. Hang in there kid!!! To Joe and the rest of the clan- take care and let us know if you need anything.
Love- Holly
Debbie, I can't sleep as there's a poem in my head.. here goes...
Debbie’s Journey,
Why does my cursor click on her site when ever I sit down?
Why does my body tremble when the blog words make me frown?
Why have I been drawn here, to visit in cyber space?
Why did our lives collide within this human race?
Why do I care so much for someone I have yet to meet?
Why do I not feel like getting up from this very seat?
Why? Because it is Debbie and she is special that’s for sure.
A powerful vibrant spirit, so much she has proven she can endure.
A caring Mom, a loving partner, a true friend to so many folk,
A great cook, a clean freak, a funny gal who loves a joke!
A Nightingale to many, now needs each of us to pray,
That she will make it through the tough nights to fight another day.
Debbie keep on pushing, we are all with you here on the outside,
We know it’s selfish to ask for more, but we are not ready to end this ride.
For there is so much left to do, the cruise, the cosmos, the par-tay,
Most of all there is so much waiting for you at home in Tennis Way.
So rest now and push the relief button, deep breaths to ease your pain,
For every breath you take your strength will soon regain.
God Bless you Dear Debbie, thanks for letting me into your life,
I wish I could take the pain away and end all of your strife.
I do believe in miracles, I surely know they are true,
For isn’t it a miracle that we have been blessed with you.
Lots of love, visitor Alison.
dear deb,
thinking of you all the livelong day. how about our allison? allison, you claim that you haven't met deb, but your thoughtful poetry suggests that you know her well. xoxoxoxokathi
Morning Deb,
Hope you slept well. Praying all goes well w/ the CT scan.
Alison, your poem was inspired...brought tears to my eyes. You are so right that Debbie is a blessing. I'm thinking you are too, not just for Deb, but for all us FODs.
Deb, many, great big wishes for a better day.
Love you, Mo
Debbie
Hang in there, I know this is unbelievably hard and you are facing some tough decisions. Pray about it and I know you will make the decision that is right for you and your family. You are so strong, even when you don't feel like that you are. I have to go, dentist appointment, but hang in there and live each day for what it is. You are an amazing woman with the most amazing family and friends.
Praying for you every day,
Jenn Kelleher
dear debbie,
ditto on all words said by "anonymous"---beautiful, so true and touching!
Alison's poem--i don't even know what to say---she is cyber angel fod. thank you alison for posting and sharing such wonderful poetic thoughts.
and thanks to cathy goodyear for doing the walk and posting the website. i was able to make a donation very easily on line by going to:
http://www.active.com/donate/ltnPhilad/
1780_cathygoodyear
debbie--be positive--i pray for strength to enable you to take it one day at a time---stay ahead of your pain. hope all goes well with the cat scan and ultrasound today.
xoxoxoxoxoxoxoxoxoxoxoxoxo
God bless you
love tessa
Deb & Joe:
Thank you "anonymous" for verbalizing the beautiful love shared by Deb & Joe. I could add other observed moments, too.
The two of you & your kids are now sharing an incredibly intimate time as a unified family. Of course, one you'd love to end soon & happily. We bloggers thank you & appreciate being included in these very personal & private moments. Despite the horror, your strength & beauty prevail. I admire & love you all...Lee
Dear Deb, Just a note to let you know that I'm thinking of you and praying that things will turn around SOON. Visitor A I loved your poem, I hope we can meet someday! Debbie, hang in there, love Mary
What beautiful thoughts from such beautiful people!!!The poem from Alison is a treasure as are you my dear Deb..I hope you are a bit better today..I just finished lighting and singing with Mackenzie and Michelle...all our love is with you and your whole wonderful family...:)Bev
Dear Deb,Joe and Family;
I am so sorry you hurt so much.
I pray for it to ease and go away.
Alison you made me cry with those chosen words.
Thankyou and God Bless all of you.
BIG HUGS
Your Aunt Angie
Dear Debbie,
I sang on my way to Baltimore and so wanted to light my lighter but somehow heard your voice (imagine I still have not spoken to you but I know I know your voice!).. and you were saying.. “don’t any of you FODs light up while driving!” so I hit my readers light instead and sang my big heart out for you in view of the Baltimore sky line hon!
We all know we need to hold off going to your room in case of germs…..but I long to appear and push a note under your door... would that be approved?! Still think we need to sing like the bejeepers under your window even if you can't physically hear us.. just picture us all the FODs et al.. gathering…somewhere under Rhoades…7 stories under your window…..
“Lets little light of mine…
.. I'm going to let it shine”... OK Mo & Bob sing it , Aunt Angie, mdf... this little light of mine, come on both the Eileen’s COD & FOD!, ….I'm going to let it shine….. all the T's snr, jnr.and very jnr… particularly the pork chop thrower.Mrs T.. oh and Debbie’s boys, Mikey ,Thunder/lightening & your princess Jessie.. & what about Christian & Emma. oh yeah.. . “this little light of mine”... Donna T-bags, and the other one?... Patty, KMC, Janet, Beth, anonymous xoxoxo, Rick AKA recipient of flying pork chops, oh yeah “ this little light of mine” joining in are Bev, Joey, Janet, Cheryl, Jeanne, KM, Edie, Ruthie, Maria, Mary, Lee… “I'm going to let it shine”….come on keep singing Allie,Walid, Beth, Eddie, Bob & Kim.. Tessa, Beach Betty, LK, Lee, Jill, Cathy, Holly, Jen.. “this little light of mine”. Bonnie, Meg, K& T… “I’m going to let it shine.. this little light of mine.. and to all of those not yet listed in this song, please forgive Debbie she had nothing to do with this except inspire us all…. “this little light of mine.. I’m going to let it shine.. let it shine.. shine on Debbie…. Let it shine… go girl.. we are all singing and praying and willing you.. come on girl, you can do it…. Let it shine…”
Debbie… Sorry if I missed folks.. I just rambled and scrambled names as I remembered them… lots & lots of love.. can’t wait until your par-tay…... visitor alison
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